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DRAFT AGENDA
| Print Version (PDF) |
| Monday, September 22, 2008 |
| 7:30 – 8:30 a.m. |
Registration and Continental Breakfast |
| 8:30 – 8:40 a.m. |
Introduction – National Institutes of Health |
| 8:40 – 8:50 a.m. |
Introduction and Conference Goals
Brad Warady, M.D., Children’s Mercy Hospital |
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Background
Moderator: Brad Warady, M.D., Children’s Mercy Hospital |
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| 8:50 – 9:15 a.m. |
Definition of Non-Adherence and Heterogeneity of Non-Adherence
Terrance Blaschke, M.D., Stanford School of Medicine |
| 9:15 – 9:40 a.m. |
The Medical and Economic Impact of Treatment Non-Adherence in the Adolescent
Fabienne Dobbels, Ph.D., University of Leuven, Belgium |
| 9:40 – 10:00 a.m. |
Risk Factors for Non-Adherence among Adolescents with Chronic Illness
Barbara Fiese, Ph.D., Syracuse University |
| 10:00 – 10:30 a.m. |
Measurement and Detection of Treatment Non-Adherence in the Adolescent
Suzanne Johnson, Ph.D., Florida State University College of Medicine |
| 10:30 – 10:45 a.m. |
Break |
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Scope of the Problem: A Disease-Specific Perspective
(report of specific studies documenting the extent and consequences of non-adherence to regimens for specific conditions listed below)
The Adolescent with Diabetes Mellitus
Moderator: Lori Laffel, M.D., M.P.H., Joslin Diabetes Center |
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| 10:45 – 11:10 a.m. |
Type 1 Diabetes in Preteens and Teens
Tim Wysocki, Ph.D., Nemours Children’s Clinic |
| 11:10 – 11:35 a.m. |
Type 2 Diabetes/Prediabetes in Preteens and Teens
Phil Zeitler, M.D., Ph.D., University of Colorado at Denver |
| 11:35 a.m. – 12:00 p.m. |
The Adolescent with Chronic Kidney Disease (CKD) and Kidney Transplantation
Robert Ettenger, M.D., University of California, Los Angeles |
| 12:00 – 12:30 p.m. |
Dietary Interventions and Nutrition for DM, CKD, and Celiac Disease
Elizabeth Mayer-Davis, Ph.D., R.D., University of North Carolina at Chapel Hill |
| 12:30 – 1:30 p.m. |
Lunch (on your own) |
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Understanding the Adolescent with Chronic Illness
Moderator: Tom Nevins, M.D., University of Minnesota Medical School |
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| 1:30 – 1:55 p.m. |
Developmental Aspects of Adolescence and Their Impact on Treatment Non-Adherence, Including Transition Issues
Maria Ferris, M.D., M.P.H., University of North Carolina School of Medicine |
| 1:55 – 2:20 p.m. |
Psychiatric and Psychologic Comorbidities
Eyal Shemesh, M.D., Children’s Hospital of Philadelphia |
| 2:20 – 2:40 p.m. |
Competing Challenges and Family Issues
(financial, insurance, emotional)
Barbara Anderson, Ph.D., Baylor College of Medicine |
| 2:40 – 3:00 p.m. |
Break |
| 3:00 – 5:00 p.m. |
Breakout Sessions: Ideas for Research Initiatives
The Role of the Family in Adolescent Treatment Non-Adherence
Tim Wysocki, Ph.D., Nemours Children’s Clinic
The Influence of Ethnic and Cultural Diversity on Non-Adherence
Carolyn Tucker, Ph.D., University of Florida
Treatment Concordance: The Patient–Healthcare Team Continuum and Its Impact on Non-Adherence
Alan Watson, M.B., Ch.B., F.R.C.P.(E), F.R.C.P.C.H., Nottingham University Hospital, U.K.
Strategies to Enhance Treatment Adherence in the Adolescent with Chronic Illness
Dennis Drotar, Ph.D., Cincinnati Children’s Hospital Medical Center |
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| Tuesday, September 23, 2008 |
Welcome: Day 2: Brad Warady, M.D., Children’s Mercy Hospital |
| 8:30 – 10:30 a.m. |
The Perspective of Patients and Parents on Treatment Adherence |
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Panel Members: Barbara Anderson, Ph.D., Baylor College of Medicine; Jeff Hitchcock, Children with Diabetes; Allison Tong, M.P.H., University of Sydney, Australia
Moderator: Richard Fine, M.D., Stony Brook University School of Medicine
Topics to Be Covered:
- Peer Influences, Including Social Support
- Quality of Life
- Parenting: Monitoring and Supervision
- Communication within the Family
- Relationship to the Healthcare Team, Including Communication
- Perceived Barriers to Adherence (“What Gets in the Way of You or Your Teen Following Their Medical Treatment Regimen”)
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| 10:30 – 10:45 a.m. |
Break |
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Interventions to Promote Treatment Adherence
Moderator: Mike Rapoff, Ph.D., University of Kansas Hospital |
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| 10:45 – 11:10 a.m. |
Lessons to Be Learned from Adult Intervention Studies
Jackie Dunbar-Jacob, Ph.D., R.N., F.A.A.N., University of Pittsburgh |
| 11:10 – 11:30 a.m. |
Meta-Analysis of the Literature on Chronic Pediatric Diseases to Determine What Has Worked to Improve Adherence and Any Effects on Health Outcomes
Dennis Drotar, Ph.D., Cincinnati Children’s Hospital Medical Center |
| 11:30 a.m. – 12:00 p.m. |
Innovative Approaches to Intervention, Published and Unpublished, That Include Unique Outreach, Such as Using Electronic Interactions, Cell Phone Text Messaging, Etc.
Lori Laffel, M.D., M.P.H., Joslin Diabetes Center |
| 12:00 – 12:20 p.m. |
Top 10 Ways of Improving Research on Adherence
Mike Rapoff, Ph.D., University of Kansas Hospital |
| 12:20 – 1:30 p.m. |
Lunch (on your own) |
| 1:30 – 2:30 p.m. |
Reports of the Workgroups and Closing Remarks
Brad Warady, M.D., Children’s Mercy Hospital |
| 2:30 p.m. |
Adjournment |
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